In July 2024, 28 PCH children and their families will set off on Cruise4Life, a one-of-a-kind research cruise. Lots of doctors and researchers from the PCH2cure project will spend a week in close contact with the families and their children with PCH2.
The goal is to discuss in small workshops the most significant restrictions in the children’s quality of life and to hopefully achieve an improvement for many of the participating children by the end of the trip, which could then be helpful for all the other children.
