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© Andrea Katheder

Life Hacks

This section contains articles on various issues relating to everyday life with PCH2, explaining the symptoms of the condition and offering advice on how to deal with them.

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Sleep problems are very common in (small) children. This is considered normal in the first year of life, as the sleep-wake cycle is still developing and waking up at night…

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Epilepsy means that the brain or individual areas of the brain are overactive and send out too many signals. This can be detected by means of an electroencephalogram (EEG, recording…

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Parents of affected children have reported that their children assume a C-shaped posture over a longer period of time, sometimes for several hours. The children seem to feel highly uncomfortable;…

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Feeding difficulties is a broad term. Overall, a feeding situation is considered abnormal if the duration of a meal exceeds 30 minutes, if very frequent meals are necessary (more than…

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A motor disorder in the form of frequent, involuntary movements and a significant impairment of voluntary motor skills is one of the main symptoms of PCH2. Different Movement Patterns This…

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