February 28, 2025 was Rare Disease Day. To mark this day, the University Hospital of Tübingen made a short video together with Axel Lankenau, father of two sons with PCH2.
The video, currently only available in German, provides an insight into the lives of Jonas (20) and Felix (18).
“I want to give my sons as good a life as possible and show other families that many things can be achieved within a certain framework.”
(Axel Lankenau)
